Update

I know people have been wondering, so here is the update!
I saw the Cardiologist on and it didn't go very well. The procedure has become controversial because there is only a 50/50 chance that it will help end the symptoms. It's also ridiculously expensive so IHC is cracking down. The Dr explained this all began recently and if I had come to him 3 months ago, he could have done the procedure. However, now my case has to be presented to a board for IHC, and they will decide if I can have the surgery or not. He told me the only way at this point to get approved is if I've already had a stroke. I told him what my life has been like since the PFO has started manifesting itself. He was sympathetic, but told me his hands were tied. I asked him what kind of quality of life I could have, but he didn't answer. (suuuuper comforting) He did say we could do a TEE to get a better picture of my heart, but it wouldn't change whether or not I could have the surgery. It was just the last test to do, to see how big the hole it. We did that procedure on Tues. He didn't show up, so after 3 hours of waiting, they called another cardiologist to come.

I called St. Marks Heart Center to get a second opinion and will be going in later this month. I also called my Neurologist to let them know. They called me back today. They informed me that the lesions on my brain were mini strokes, so that alone should qualify me. Thankfully, the Neurologist will be my calling  my Cardiologist for a chat. So at this point. I have no idea what's going on or what will happen :)
It's been pretty upsetting and I've been trying to absorb all this information and trying to map out what to do, coordinating insurance and Drs etc. I think at this point I'm more ticked than anything else. I can't even believe all the political garbage that is going on. It's all about money and has nothing to do with me, and yet is preventing me from moving on with my life. It is what it is and I have nothing to do but wait.

This may sound weird, but for me the most comforting thing is just knowing that people KNOW. This is why I blogged about it to begin with, it was so comforting just to inform everyone that I care about of what was going on. Especially since if someone I cared about was going through something, I would like to know. I really hope this wasn't interpreted as a cry for help. It certainly wasn't. As for me and the family. We're good as far as getting things done and living day to day. I have so many people who are so kind and ask what they can do, and really the answer is there isn't anything that needs to be done. Everything is taken care of. We learned a lot when we were pregnant with the twins, we learned to ask for help before things get out of hand. So it means a lot, all the offers we've been getting, we have been overwhelmed and grateful. And so if we need help, we'll probably take you up on it (so careful what you offer! lol). But if something changes, BELIEVE ME, we'll be making some phone calls!

Thank you so much for the kind words and comments (I love comments! Regardless of the subject!) We feel so blessed to know such wonderful people. I will update if anything changes!